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Families and carers - we will work with families and carers

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Triangle of Carer Membership Scheme - one star awarded
"Without having friends and family to provide support and enable me to leave hospital within a week I may still be there now, rather than where I am - working, looking after my family and with hope for the future.'" Service User

Families, parents, and carers are often a vital part of the life of someone who needs the services of the Trust, and they can be the people who are keeping them well and living in the community. Where the person being supported is a child or young person, parents and families are an essential part of the process. The Trust values the role that families and carers play as partners in care, wants to support this role, and work with them for the wellbeing of the person.

If children or young people are supporting a relative as a young carer, they are likely to be a child in need.

Where carer/relatives relationships are not identified as supportive, the individual will be supported to decide how this will be managed

We also recognise that caring for someone who is unwell, or has problems, can have an impact on the lives of families and carers, and we want to help identify any needs they have, and to support their wellbeing wherever we can.

We believe this is important, so have signed up to the national 'Triangle of Care: Carers Supported' Membership scheme

Sharing information with carers is important - see below for guidelines around Confidentiality and Carers

See our New Carers Handbook for more information

See our Infolink Families and Carers Resource Directory 

See our 'How to get help card' for families and carers 

Read the Practical Guide to Caring published by NHS England

How Carers can feel - poem read by Paul Wiggins   

'We encourage you to understand, value and respect the important work that carers do, often with no recognition, and work cooperatively with carers when meeting the needs of the people who use your service.' CQC Essential standards of Quality and Safety

Who is a carer

‘A Carer is anyone who cares, unpaid, for a friend or family

member who due to illness, disability, a mental health

problem or an addiction cannot cope without their support’

            

 

The Care Act 2014 changed the definition of a carer who was entitled to an assessment of needs to someone who 'on the appearance of need' was a carer. There are no definitions of hours worked any more.

You are a carer if you provide unpaid support with day to day living tasks or personal care to a family member or friend. Those you care for could be ill, frail, disabled, suffer from poor mental health or have a substance or alcohol misuse problem. Often carers care for more than one person and there may be family situations where, for example, a couple mutually care for each other and there is no main carer. 

You may spend many hours every week providing emotional and practical help. Illness can be unpredictable and emotionally exhausting. The strains and responsibilities of coping with this can affect your own mental and physical health. You may feel permanently ‘on call’ to the person you care for. Carers often feel that the problems they experience are part of everyday life, and to ask for help or to complain is to admit failure. Asking for some help does not mean you cannot cope. With the right kind of support, you may be able to get more out of life for you and the person you care for. 

Young carers are young people, including children, under the age of 18, who provide care and support to another person on a regular basis, for example a brother or sister, grandparent or parent. They may help care for someone who has a physical or learning disability, terminal illness, depression or mental ill health, or someone who has a drug or alcohol problem. The support young carers give may vary from practical help such as shopping, housework or cooking. It could also be personal care for example bathing, toileting, or it may involve them offering emotional support to someone who is depressed. Often they will be doing a number of these things. (see tab below)   

Statistics

The Office of National Statistics(ONS) report that approximately 5.8 million people were providing unpaid care in England and Wales in 2011, representing just over one tenth of the population. The absolute number of unpaid carers has grown by 600,000 since 2001; the largest growth was in the highest unpaid care category, fifty or more hours per week.

There has been a rise in the numbers of Carers in Derbyshire and Derby City since the 2001 census - see the figures from Carers UK  

Carers UK briefing says that:

1 in 8 adults (around six million people) are carers.
  • By 2037, it's anticipated that the number of carers will increase to 9 million
  • Every day another 6,000 people take on a caring responsibility - that equals over 2 million people each year.
  • 58% of carers are women and 42% are men
  • Over 1 million people care for more than one person
Carers save the economy £119 billion per year, an average of £18,473 per carer
  • Over 3 million people juggle care with work, however the significant demands of caring mean that 1 in 5 carers are forced to give up work altogether.
  • The main carer's benefit is £58.45 for a minimum of 35 hours, equivalent to £1.67 per hour - far short of the national minimum wage of £6.08 per hour (2012-2013 figures)
People providing high levels of care are twice as likely to be permanently sick or disabled
  • 625,000 people suffer mental and physical ill health as a direct consequence of the stress and physical demands of caring.
  • 1.25 million people provide over 50 hours of care per week

We want to make sure you can access the information you need.

  • There is a glossary on the site that explains the meaning of any terminology that's not obvious 

  • If you need information in another language, click on the buttons at the bottom of the front page to translate the whole site, or contact us for a leaflet translation

  • If you prefer Easy Read, click here

  • If you need a care plan or other form translating, let us know

  • If you need the text larger to be able to read it better, click on the text size at the very top of the page - the bigger the letter A you click on, the bigger the text will get

Support

Derbyshire Mental Health Carers Forums are a self-help group of mental health carers and ex-carers holding forum meetings and support groups at various locations throughout Derbyshire. Click here for North Derbyshire Mental Health Carers Forum  (click here for their leaflet) and South Derbyshire Mental Health Carers Forum

Derby City - find out about Talking Points, an opportunity to talk face to face with a social care worker

Derbyshire Carers Association provides advice and support for mental health carers in Derbyshire and Derby, and carers of other people in Derbyshire and Derby

Making Space Derby City and Derbyshire County Dementia Service

Alzheimer's Society

Carers Trust East Midlands provides support and respite for carers - ring them on 0115 962 8920 for support, advice and information

Registering with your GP as a Carer

Carers Chat online discussion

Find out about a scheme to provide Computers 4 Carers

Learning Disability Carers Community

Derbyshire Befriending Directory

Derbyshire Parent Partnership  Free, confidential, impartial help, advice and support for Parents and Carers of children and young people

 


Advice

Looking after someone: a guide to carers rights & benefits - Carers UK

Quick Guide to Caring from Carers UK

Checklist of questions to ask the psychiatrist

Derby City Council – Looking after Someone advice

Derbyshire County Council – Caring for Someone advice - British Sign Language version of Guide to Carers Services

The Carers Trust provides information for carers, professionals and patients

Human rights guide for carers and cared for

Carers UK

NHS Choices - Carers Direct or ring 0808 802 0202 for free confidential advice and information for carers

Direct.Gov Caring for Someone gives advice and information about carers rights

My rights Your responsibilities - a guide for parents of young disabled people


Relationships

Tips on coping with mental health in your relationship from Relate 


Money and benefits

Carers Trust have information and advice on money

Free cinema tickets for carers from C.E.A.

Carers Benefits Factsheet


Medicines

Find out about medicines, side effects, and mental health problems


Nutrition

Nutrition and Caring advice from Carers UK


People with a learning disability 

Derbyshire Learning Disability Carers

Information for Carers. How to help people with Learning Disabillities to keep healthy

Learning Disability Carers Community Support Group on Facebook

People with dementia

Dementia Challengers - information for carers

Making Space Derby City Dementia Service

Alzheimer's Society

Becoming a Carer A booklet about looking after someone with dementia. It explains some of the basic facts about dementia, gives ideas on where you can get practical and emotional support, offers advice on how to plan for the future, and provides some tips on caring for people with dementia

The Herbert Protocol

The Herbert Protocol initiative is named after George Herbert, a Second World War veteran of the Normandy landings, who lived with dementia and repeatedly went missing from his care home whilst trying to return home.

The Herbert Protocol is a national scheme being introduced by Derbyshire Constabulary and other agencies which encourages carers to compile useful information which could be used in the event of a vulnerable person going missing.

Carers, family members and friends or professionals can complete the form in advance.

It is a form which records all vital details, such as medication required, mobile numbers, places previously located, a photograph etc which will help locate the person if they ever go missing. Click here to find out more about the Herbert Protocol

Advice for carers about someone LGB with dementia moving into a care home - from Carers UK

People with psychosis

Mental Healthcare offers information on psychosis for family members and friends

Older people

AGE UK Guide for Carers

Caring for an elderly parent

Families affected by drug use

Adfam supporting families affected by drug use 

Parents and Carers affected by self-harm

A guide for parents and carers of young people who self-harm has been released for free download.

Young Carers

Young Carers Net: website and online support service for children and young people under the age of 18, who help to look after someone in their family with an illness, disability, drug/alcohol addiction or mental health problem.

Two Women with Leaflets

This is a new section under development

When emergencies happen, our lives are put on hold whilst we deal with the aftermath. For many carers life cannot simply be put on hold, when the person they are looking after relies on them for vital help and support. When a carer is rushed into hospital, who else will step in?

Derby City Council Carers Emergency Plan

Derbyshire County Council Carers Emergency Card

Advice from Carers UK on planning for emergencies

How to get help card for families and carers

The Herbert Protocol

The Herbert Protocol initiative is named after George Herbert, a Second World War veteran of the Normandy landings, who lived with dementia and repeatedly went missing from his care home whilst trying to return home.

The Herbert Protocol is a national scheme being introduced by Derbyshire Constabulary and other agencies which encourages carers to compile useful information which could be used in the event of a vulnerable person going missing.

Carers, family members and friends or professionals can complete the form in advance.

It is a form which records all vital details, such as medication required, mobile numbers, places previously located, a photograph etc which will help locate the person if they ever go missing.  Click here to find out more about the Herbert Protocol

Quick Guide to respite for Mental Health Carers in Derbyshire

It is important for all carers to sometimes have a break from their caring role. There are lots of ways of doing this.

Taking a break

  • Derby City Carers Break Scheme - Carers need to be registered with a Derby City GP as a carer and be over 18. This can be done by either visiting Derbyshire Carers Association Offices and completing the form, or asking your GP and filling in the form at the surgery. This is then sent on to Derbyshire Carers Association. You can contact Derbyshire Carers Association on 01332 200002 ext 4. Once this has been done, the carer is entitled to attend a range of activities (not including holidays) offered by Derbyshire Carers Association and the service is free. If you need someone to look after the person you care for while you are having a break contact Crossroads on 01332 344448 or 07788201126.

  • Derbyshire County Take a Break Scheme – these are short term breaks for carers who need some time of their own and is available to carers living across Derbyshire. This is a free service. For more information or to make a referral call 0115 962 8920 option 2. This is a free service provided by Crossroads Care.

Personal Budget

Thinkcarer are the organisation if you live in Derbyshire which can assess your needs and work out what help you need. Contact them on Tel: 01332 380224 or Email: enquiries@thinkcarer.org.uk. They will work out what difficulties you are facing and what might help. The assessment form is passed to Derbyshire Carers Association who work out with the local councils what respite funding you will be entitled to.

  • Derby City – If you have your needs assessed as a carer you can be allocated a personal budget to support you to have a life outside caring and enhance your health and wellbeing. Contact Derbyshire Carers Association about an assessment, and some support.

  • Derbyshire County - Carers may qualify for up to £250 one off annual payment to support them to have a life outside caring and enhance their health and wellbeing. The grant is given by Derbyshire County Council. It could be used to purchase a gym membership for example, or to fund a short break away. Contact Thinkcarer about an assessment on 01332 380224. There are specific criteria to meet in order to access this fund. The fund is administered by Derbyshire County Council in partnership with Derbyshire Carers Association and the funding is from NHS Derbyshire County. Carers can also ring DCA on 01773 743355 with any queries on this, as well as contacting Thinkcarer.

 

Holidays for Carers

The Kiloran Trust is a large welcoming house in west London in which full time carers at home can come for a holiday / supportive break

The Carers’ Support Centre is a charity providing low-cost holidays for carers. The holidays are designed for carers and their families to have an affordable break. They are for carers, either alone or with the person they care for. They offer disabled accessible accommodation in caravans in Torbay and the Cotswolds.

Holidays for disabled people can be accessed from Can Do Holidays

Mencap

Mencap report on short breaks for family carers

Advocacy services for carers and parents

There may be times when you need help, or someone to speak on your behalf, for example if you're having difficulty accessing benefits or services. An advocate is someone who argues your case for you. 

Advocacy organisations

To find out about general advocacy services in Derbyshire see The Stuff

Derbyshire

 

National advice from Carers Direct

Some local councils have their own advocacy services. To find out if there are any in your area, you can contact your local council or check its website. You can use the search function on the GOV.UK website to find the contact details.

Age UK gives advice and information to older people and their carers, family, friends and other people involved in their care. Some branches offer advocacy services.

Carers UK has a free advice line for carers. Call 0808 808 7777 or visit the Carers UK website for advice. Carers UK doesn't provide an advocacy service, but can give you information on where to go for help.

Call Carers Direct on 0808 802 0202

Free, confidential information and advice for carers. Lines are open 9am to 8pm Monday to Friday (except bank holidays), 11am to 4pm at weekends. Calls are free from UK landlines and mobiles or you can request a free call back. You can also ask for a call back in one of more than 170 languages including ربي, বাংলা, 中文, Français, ગુજરાતી, Polski, Português, ਪੰਜਾਬੀ, Soomaali, Español, Türkçe and .اردو. See Carers Direct for lots more information for carers. You can talkto an adviser live online or send a query by email. Find out more about the Carers Direct helpline.

Carers of adults with autism

Advice for parents of young people with autism - Your rights

Young Carers

Young Carers are...

children and young people who look after someone in their family who has an illness, a disability, or is affected by mental ill-health or substance misuse. 

Young Carers are children and young people under the age of 18 who regularly care for someone withing the family with a physical illness or disability, mental health issues or alcohol or drug dependency. 

Young Carers may have little time for themselves and are often unable to attend after school activities, go on school trips or socialise with friends. 

Babble - new online community for young carers from Carers UK

Derbyshire Young Carer's Service

Derbyshire Young Carer's Service provide services and support for Young Carers - Click here to view their Information leaflet or contact them on 01246 207752.  Click here to find out more about help available in Derbyshire for Carers under the age of eighteen.

See the story of a youg carer and Daniel, a day in the life of a young carer

Young Carers can find out...

Young Carers - find out more on Young Carers Net  from the Carers Trust. There is a message board, webchat, agony aunt page, and lots of information for young people who are looking after someone.

Young carers in focus at Make Waves, a project jointly run by the Childrens Society with others

For information for and about young carers from the Royal College of psychiatrists: 

  • Caring for a parent with mental illness
  • Caring for young carers
  • Emotional support for young carers: report

Coping with a new baby - advice from Relate

My rights Your responsibilities - a guide for parents of young disabled people


Advice and information for parents and carers from the Royal College of Psychiatrist, including:

Growing up

  • Surviving Adolescence
  • The restless and excitable young child
  • Dealing with tantrums
  • Depression in young people
  • Sleep problems in childhood and adolescence
  • Children who soil or wet themselves
  • Self-harm in young people
  • Worries and anxiety - helping children to cope
  • The emotional cost of bullying
  • Alcohol and drugs: what parents need to know
  • Nutrition and mental health
  • Smoking and mental health 

Parenting   

  • Good parenting
  • Divorce or separation of parents - the impact on children and adolescents
  • Death in the family - helping children to cope
  • Parental mental illness - the problems for children
  • Domestic violence - its effect on children
  • Child abuse and neglect - the emotional effects

Disorders

  • Behaviourial problems and conduct disorder
  • ADHD and hyperkinectic disorder
  • The child with genuine learning disability
  • Specific learning difficulties
  • Understanding autism and Asperger's syndrome
  • Traumatic stress in children - how parents can help
  • Schizophrenia
  • Bipolar affective disorder (manic depression)
  • Obsessive-compulsive disorder
  • Eating disorder in young people
  • Chronic physical illnesses: the effect on mental health
  • Medically unexplained physical symptoms
  • Chronic Fatigue symptoms (CFC): helping your child to get better)
  • Shyness and social phobia
  • Psychosis

Treatments

  • Checklist for parents of children with mental health problems
  • Obssessive Compulsive Disorders
  • Child and Adolescent Faculty
  • Checklist for professionals
  • Who's who in Child and Adolescent Mental Health Services (CAMHS)
  • Moving on from child and adolescent mental health services (CAMHS): the transition
Triangle of Care

The Triangle of care - carers included is a great publication which looks at how carers can be involved and supported when the person they care for is an inpatient. The 2nd Edition has now been published, and further guidance is available

The six key elements state that:

1) Carers and the essential role they play are identified at first contact or as soon as possible thereafter.

2) Staff are ‘carer aware’ and trained in carer engagement strategies.

3) Policy and practice protocols re confidentiality and sharing information are in place.

4) Defined post(s) responsible for carers are in place.

5) A carer introduction to the service and staff is available, with a relevant range of information across the acute care pathway.

6) A range of carer support services is available.

 Watch this space for information about how we're implementing this

A new membership scheme has been launched by Carers UK

Find out more on the Carers UK website

Triangle of care introduction on YouTube

The Care Quality Commission in its standards says that:

'We encourage you to understand, value and respect the important work that carers do, often with no recognition, and work cooperatively with  carers when meeting the needs of the people who use your service.'

  • Identifying key individuals who provide support to the person in areas such as parenting, day to day living, medication, or emotional support

  • Making sure that they have information including key people to contact

  • Thinking about information sharing, and working out with the individual what information should and should not be shared, and what has to be kept confidential. Making sure that consent is gained for any information sharing / involvement of carers/relatives unless there is a good reason to overrule this.

  • Identifying children and young people who act as carers for adults and need support and help.

  • Providing carers who provide regular and substantial care for someone with their own assessment and support plan, or signposting/referring them to other services that can help

  • Taking into account the role of family and carers in planning care

  • Involving Carers/family members in treatment where this is appropriate and has been consented to

  • Identifying whether the individual is a vulnerable adult, or requires more professional judgement around involving their carers etc. or whether they can decide this themselves – this should be reviewed regularly

Guidance for staff, carers, and service users on the disclosure of information in Mental Health Services

'Issues around confidentiality should not be used as a reason for not listening to carers, nor for not discussing fully with service users the need for carers to receive information so that they can continue to support them. Carers should be given sufficient information, in a way they can readily understand, to help them provide care efficiently' (Developing services for carers and families of people with mental illness Derpartment of Health November 2002)

The 7 Golden Rules for information sharing for Staff

  1. Remember the Data Protection Act is not a barrier to sharing information

  2. Be open and honest
  3. Seek advice
  4. Share with consent where appropriate
  5. Consider safety and wellbeing
  6. Information shared should be: necessary; proportionate; relevant; accurate; timely; and secure
  7. Keep a record

(from 'Information Sharing: Pocket Guide' HM Government 2008) 

This is guidance only, and should be checked against specific policies, and if necessary legal advice, before being acted on. In this guidance, carers are anyone who provides regular support for someone with a mental health problem who is a friend, relative, spouse or partner. A carer in this context is not someone who is employed directly or indirectly by any agency.

Information sharing is key to the goal of delivering better, more effective services that are co-ordinated around the needs of the individual. It is essential to enable early intervention and preventive work, for safeguarding and promoting welfare, and for wider public protection. It is also important that people remain confident that their personal information is kept safe and secure and that workers maintain the right of the individual to privacy, whilst sharing information appropriately as part of their day to day work. It is important to remember that there can be significant consequences from not sharing information, as there can be from sharing information.

Protecting confidential information is about balancing:

  • The need to know with the need for privacy

  • Risk of harm with the need for personal choice

  • the duty of care of staff with the preferences and rights of service users and carers

 

This guide looks at four main areas:

  • What information is confidential and why?
  • Seeking consent to share information
  • How does confidentiality affect the involvement of carers in planning support?
  • What are the situations and instances when confidential information can or must be shared?

 

What information is confidential and why?

Confidential information is information of a private and sensitive nature that is:

  • Not already in the public domain or readily available from another public source; or

  • has been provided in circumstances where the person giving the information could reasonably expect that it would not be shared with others

 

Personal information subject to Data Protection Law is information about an identifiable living individual, or information that could enable a living person to be identified when considered with other information. Personal information is needed to deliver individual care and treatment. It is also needed to make sure the care we provide is of a hiigh quality. It may also be used to protect public health, manage and plan services, or to teach and research health needs.

Personal information about an individual using a service is treated as confidential. Service users need to feel safe to share personal information. Whether it is an address or a diagnosis, workers have a duty to protect that information appropriately.

Staff in health and social care are bound by rules of confidentiality.

Seeking consent to share information

“When the issue of meeting his parents was raised with Tim, he said he did not want them involved. His key nurse on the ward took time to sit down to discuss his concerns with him. It transpired that Tim’s main concern was that he would have to disclose the fact that he had taken drugs in the past. He was happy for other information to be shared, in fact, he was pleased that someone wanted to offer support to his parents whom he knew were finding it hard to understand what was going on.”

Principles about consent:

  • Obtaining consent is best practice;

  • Consent can be verbal or written;

  • Consent must be informed;

  • Consent can be withdrawn at any time; and

  • Consider whose consent should be sought. Doues the person have the capacity to understand and make their own decisions on this occasion? If not, is someone else authorised to act on their behalf?

     

Staff should seek consent where possible, and would usually respect the wishes of those who do not consent to share confidential information. Information may still be shared without consent if that lack of consent may be overidden in the public interest.

Consent is not needed in all situations, and should not be sought, for example, where doing so would:

  • place a child at increased risk of significant harm;

  • place and adult at increased risk of serious harm;

  • prejudice the prevention, detection, or prosecution of a serious crime; or

  • lead to unjustifiable delay in making enquiries about allegations of significant or serious harm

 

Within mental health services, the Care Programme Approach clearly sets out the expectation that service users will be involved in negotiating the care they receive. Workers need to be clear that, as part of that negotiation, they explain openly and honestly from the outset about why, what, how and with whom information will or should be shared, and seek their agreement, unless it is unsafe or inappropriate to do so. The imp[lications of sharing and withholding information need to be discussed. If service users are informed about how and with whom their personal information will be shared, it will not usually ne necessary to inform them again, as long as the use as described originally is the same. There is a Trust leaflet which can be used to explain about how personal information is used. 

When staff do share information they should:

  • only disclose the minimum that is necessary for the purpose;

  • share only with those people who need to have it;

  • make sure it's accurate and up to date;

  • is shared in a timely fashion; and

  • is shared securely.

 

The use of Advance Decisions or Statements of Wishes by service users may help in outlining what they would like to be shared in what circumstances, when and how, if they are too ill to have the capacity to consent.

How does confidentiality affect the involvement of carers in planning support?

“I need to know what you are trying to achieve for my son and how you are planning to do it. I need to understand the treatment that he is receiving so that I can play my part in his recovery programme. What I do not need to know are the personal details of what takes place between him and the professionals concerned.” (quote from a member of Rethink whose son has a serious mental illness)

The rights and roles of carers both to receive and be consulted about confidential information are not as clear as those of service users. The Trust recognmises and promotes the importance of involving carers in care planning (see other sections on this webpage). Staff need to be clear about who is central to the care process (and so needs full information where possible) and who is less central (where a decision should be made about the level of information they need. Staff should discuss this with their managers if they have any concerns, and seek advice.

Most people are pleased for their carers to be included as much as possible, however carers have no automatic right to this involvement. They may have different rights or responsibilities as next of kin or nearest relative. If a service user does not consent to the involvement of their carer, the Care Co-ordinator or lead professional (and other staff) must respect this choice, but should negotiate where possible about what information can be shared. The decision should not be seen as irreversible, and should be discussed again as part of any review, considering both the short term management as well as the long term implications.

It may be necessary to ask for information and views from carers, and their right to confidentiality should be respected in the same way.

When can or must confidential information be shared without consent?

  1. Disclosure is required by law or Court order: such as  before or during the procedings for personal injury or death, producing information to an applicant in legal procedings and their legal, medical or professional advisors e.g. a personal injury claim, or to help prevent, detect or prosecute serious crime (the Police and Criminal Evidence Act 1984 identifies arrestable offences such as treason, murder, manslaughter, rape, kidnapping, certain sexual offenses, casuing death by reckless driving etc. Check with the Trusts legal advice in these situations. 

  2. Disclosure is necessary to protect the Public: wherever there is an assessed risk to public safety, risk to a carer or other identified individual, staff have a responsibility to pass on information as soon as possible to avert the risk. Information should only be passed on where there has been consideration of all the factors in a particular situation.

  3. Disclosure where there is a 'need to know': Information can be crucial in maintaining the wellbeing of a service user. Where there is a definite, legitimate interest, disclosure can somethimes be justified under common law, when it is judged to be in the service users best interests. See below for more advice on this.

 

Need to Know

This is the most difficult area to determine. An example of such a situation would be:

making a judgement about the level of disclosure where it is not possible to know the individuals wishes e.g. where the person has Alzheimer’s Disease. The provisions of the Mental Capacity Act 2005 may help in this situation.

The role of carer is a valuable one, and every effort should be made to support and help their work, bearing in mind that: 

  • The fact that disclosure may be beneficial does not lessen the service user’s right to confidentiality

  • Where the service user has the capacity to refuse disclosure to the family and does refuse, this wish must be respected unless there are overriding reasons of public interest not to do so, for example, because of a risk of violence to others 

  • The best interests of a service user who is not competent to consent may warrant disclosure

  • There may be different provisions for a carer who also has parental responsibility

  • Young people aged 16 or 17 are presumed to be competent for the purposes of consent to treatment and are therefore entitled to the same duty of confidence as adults

  • Children under 16 who have the capacity and understanding to take decisions about their own treatment (i.e. who are ‘Gillick competent’) are also entitled to decide whether personal information may be passed on and generally to have their confidence respected. However staff should encourage children to involve parents when significant decisions need to be made and would usually inform the parents, and seek their consent if the child has refused to consent to treatment for a life threatening condition

  • If the service user does refuse to consent to disclosure to family/carers then we will maintain contact with the family/carers, offer support, and give them information that does not breach the confidentiality of the patient

  • The legal and therapeutic impact of disclosing confidential information should always be considered before it is released. It may be helpful for workers to seek management, professional or legal opinion.

  • The process followed when considering releasing confidential information, along with the reasons for doing so, should be recorded in the person’s case notes.  People can have access to most records held about them.

 

What if you feel that information has not been dealt with appropriately?

Carers & Service Users

Depending on whom you feel has not shared information appropriately, talk to the Care Co-ordinator/lead professional, or their manager. Be clear and specific about what has gone wrong. If you feel that it would help, write down what it is that you are unhappy with. The person you report the problem to will probably want to meet with you to talk it through.  Feel free to bring along someone to support you, who could be either a friend, relative or advocate.  Carers can often get support from carer’s organisations.

Breaking confidentiality is very serious and you may wish to make a formal complaint. It is important that organisations look after personal information and you will be helping the Trust to check that it is doing everything possible to keep confidential information safe. Your complaint will be treated with sensitivity and understanding. A full investigation will be undertaken and you will receive a response from the Chief Executive. Please contact the Complaints Manager

Staff

Talk initially with your line manager if you feel that confidentiality has been breached.  They will advise you on how to proceed. Refer to the ‘Staff Code of Conduct for Confidentiality of Person Identifiable Information’

For more information see: Partners in Care Carers and Confidentiality

Good Practice Checklist

Carers are given general factual information, both verbal and written about:

Check box

The mental health diagnosis

Check box What behaviour is likely to occur and how to manage it
Check box Medication – benefits and possible side-effects
Check box

Local in-patient and community services

Check box The Care Programme Approach (CPA)
Check box Local and national support groups

 

Carers are helped to understand:

Check box

The present situation

Check box Any confidentiality restrictions requested by the patient
Check box The patient’s treatment plan and its aims
Check box

Any written care plan, crisis plan or recovery programme

Check box The role of each professional involved in the patient’s care
Check box How to access help, including out-of-hours services


Carers are given:

Check box

The opportunity to see a professional on their own

Check box The right to their own confidentiality when talking to a professional
Check box Encouragement to feel a valued member of the care team
Check box

Confidence to voice their views and any concerns they may have

Check box Emotional and practical support
Check box An assessment of their own needs with their own written care plan (ie if the patient has a serious mental illness or learning disability)

We want to provide the best support possible to Carers who use our Services.  The Carers Champions are a network of staff members located around our healthcare services who are leading on Carers issues.  They are a local link point for staff and Carers to get information and advice.

Click here to view the list and find out how the Carers Champion is in your area.

Carers Champions Events 2017

Twice yearly we run Carers Champions Events.  They take place in the north and the south of the county.  We invite Carers Champions, partners and stakeholders to come along and find out about current issues that might be affecting carers and families and to find out about the Trusts progress with implementing the Triangle of Care.  Below is a selection of hand-out's from these events.

February 2016

Presentation on Young Carers

Presentation on the Triangle of Care

Link to the Triangle of Care website

Triangle of Care Self-Assessment Tool

Carers Policy

Derbyshire County Council - Direction of Travel for Carers

Carers Newsletter January 2016

Carers Champions Poster

Carers and Families Handbook

Example of an inpatient letter to cares and families 

Role of the Carers Champion

Link to the Families and Carers Infolink Handbook

The way we record will depend on your needs and what works best for you – these are some examples we might use)

The following are examples of tools that could be used:

Carers Own Assessment form COA

Working Together with Carers form WTC

Carers Record form CR

CPA4CAMHS documentation

Case Conference Reports

Specialist Children’s Services:

Care plans are developed based on information given by parent/cares and initial assessment and ‘health needs assessment’ tool completed.

Annual review of care plans undertaken with parents/carers.

Universal Services:

CAF

Bite size: Carers Assessment

Working with Carers and Families

Integrated processes training

Competency frameworks for staff

Knowledge of support services available for children and young people, carers/families e.g. safe and sound

The Derbyshire Observatory gives statistics about carers in Derbyshire

The Draft Care and Support Bill is now out for consultation, which includes information about The Law for Carers

The Trusts Medicines Choices information

Department of Health Information about Carers Strategy

Recognised Valued and Supported: Next Steps for the Carers Strategy Department of Health 2010

Triangle of Care: carers Included – best practice in acute mental health care

Choice and Partnership Approach in CAMHS services

Derbyshire Learning Disability Partnership Board

Derby City Learning Disability Partnership Board 

Transitions in Mental Health Care - A guide for health and social care professionals on the legal framework for the care, treatment and support of young people with emotional and psychological problems during their transition years  - include a guide to carers and parents support 

Caring Conversations: Black Asian and Minority Ethnic Carers

Professionals guide to working with carers, from the Carers Trust

Employers for Carers

A toolkit for family Carers of adults with Learning Disabilities 

Please Remember Ben: Episodes in the lives of Mental Health Carers 

Stop Hiding Self Harm Self Help Website

Making it real for carers - Personalisation and Carers

Commissioning better outcomes for Carers Carers UK 2010

Carers and Personalisation: Improving Outcomes DH 2010

Supporting young carers and their families Childrens Society

State of Caring 2014 Carers UK